Donations pour in for Bob Saget’s favorite charity

Joanne Gould, executive director of the Scleroderma Research Foundation (SRF), shared with CNN Thursday her gratitude for the upcoming support. One of her colleagues on Saget’s board of directors gave the charity a gift of $1.5 million in grants in proportion to each donation made in Saget’s honor, Gould said.

“We received donations from more than 1,500 donors around the world, totaling more than $90,000 – before the match was announced,” Gold said in a statement. “Other people inspired by Bob have contacted us regarding their desire to raise funds in his honor.”

For example, she said, the Fredericksburg Nationals, a Virginia junior baseball team, wants to honor Saget in their “Legends Never Die” game, while another Saget fan wants to do a Twitch fundraiser.

Saget, who died Sunday at the age of 65, lost his beloved sister, Jay, in 1994 after a battle with the rare autoimmune disease scleroderma.

The loss prompted him to raise funds for research and advocacy for treatment.

Ironically, the comedian and actor initially became involved with SRF before his sister was diagnosed with the chronic disease, which can lead to hardening and tightening of connective tissues and skin.

Saget told NIH Medline Plus Magazine in 2019 that years before his sister became ill, he “received a call from someone I didn’t know asking me to host a comedy fundraiser for a disease about which I knew very little.”

“I answered yes and hosted the event starring Ellen DeGeneres, Rosie O’Donnell and others,” he said. “I didn’t know that after only a few years, my sister would be diagnosed with the disease.”

Saget shared that his sister was 44 and a teacher in the Philadelphia area when she was first diagnosed. Medications, including prednisone and cortisone, were used to treat her, he said, but only treated her symptoms.

“She had to move to Los Angeles to live with my parents because she needed a lot of help,” Saget said. She died just two years later.

The host of “America’s Funniest Videos” has been on the SRF Board of Directors for nearly two decades and has hosted their events for more than 25 years.

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